Patient Case Brief
Patient Case Brief
Back in 1990, I had my first partial complex seizure at sleep time (was around 12 year old), and I ignored it for long years as I figured that not sleeping in the middle of the day resolved the issue and I no longer had them.
Worth mentioning that between 2000 and 2009, I used to do Bubbly (smoking) every other day.
Mohammed was diagnosed with left temporal low grade glioma in 2009 though highly suspect it had been around for decades given his history. Mohammed started having nocturnal seizure-like episodes at 12 years old that went untreated. Interesting to note that if he took an afternoon nap it would result in a nighttime episode.
In 2005 he noted left leg numbness and a brain MRI noted a mass in his temporal lobe and it was then followed for years with regular scans. In June 2008, his scan showed enlargement and he was symptomatic with some changes in his recognition and meaning of words while reading along with some confusion. In November 2008 he consulted with a neurologist who recommended a surgical resection.
In 2006, by coincidence, I made my first brain MRI to discover that I have what appeared to be a benign tumor. The doctor told me to take no action at all so I ignored this until 2008 where I had my first partial complex seizure. That made me focus on taking action towards surgery.
I had my brain surgery on February 9, 2009 in Canada at which time they resected my low grade glioma which was diagnosed as a Astrocytoma Grade II (later in Cleveland – UK they said it is oligoastrocytoma in their report). A functional MRI was done prior to surgery to target the cuts properly.
The pathology report and surgy report states that the resection removed 92% of was targeted as I stopped responding to basic question at that stage. The tumor sent off for testing which showed that MGMT methylation issues which is responsive to standard of care, namely Temozolomide.
While the surgery was “successful”, it surely left me with brain challenges that improved within three months, and then has worsened with time until this day.
No one told me to do anything beyond that. No tests, no diets, no food choices, and I used to have my high carbs diets until in 2013, one MRI showed me that some brain tumor is slightly developing, and that made me move to the Nutrition world, and I followed diets since then with different purposes.
I had 2 grand mal seizures, one in 2015 while trying to wean off Trileptal (without referring to doctor) and another in 2017 despite that I was on Trileptal.
Post surgery, sleeping was difficult because seizures would come exactly at the moment of sleep (just like when I was a child). After years of healings, this is no longer a problem. However, I have lost my ability to have dreams except rarely, like once a year.
What is more interesting is that despite that I remained without any major cancer growth since then (I’m still stage II), my brain functions has been declining one year after the other until this moment.
In 2017, I have discovered the new route of Functional Medicine, and that let me meet many fine doctors who investigated new paths that I haven’t gone through before. I will leave that discussed with the second sections.
On Nov 4th, 2020, I had covid-19 disease, and I made an MRI and I discovered that the brain tumor has grown sadly. After discussing with fine doctors, they strongly believe what caused this tumor growth is the high use of L-Glutamine (RepairVite) to heal the leaky gut, so I stopped these immediately.
On Jan 4th, I made a surgery and I removed 90% of the tumor, and that left me with new challenges (so far) as discussed below under “Memory Challenges and Reading Difficulties” below.
This is a brief about my symptoms that I suffer with at the moment, and these took place since my brain resection back 2009 or beyond
Since 2009, my challenges were word finding difficulties. Almost impossible to remember far past events. I read slowly and I get tired after reading beyond two pages.
However, after the second surgery in Jan 5th, 2021 I have started having more challenges. finding words has become worse, and readings has become far worse.
The second surgery took place successfully on Jan 4th, 2021. The Pathology stated that it is Grade II Oligodendrogliomas. 90% of the tumor was removed, and 10% remained.
Different options are on the table on what to do to probably remove those remaining 10% (and more importantly, to stopping the growth)
Fatigue has become difficult right after surgery. This is since my surgery on Jan, 5th 2021 until now (10 days post surgery). I was told that this will stay for few weeks. I decided to take L-Carenitine hoping it can help.
Had two grand mall seizures in 2013 and 2017. CBD has helped a great deal, but some incidents like getting sick or unknown reasons can easily get me auras and seizures.
After my second brain surgery on Jan 2021, I am seeing that my seizures are actually better than before!
I have done so many tests, all of them with the lead of different practitioners
Discovered on 2017, and tested three times so far. The tests are showing that Lipopolysaccharides (LPS), both IgG and IgA are still in the Equivocal range.
By the end of 11/2020, I will have my fourth test done hoping good progress this once.
All the readings are green except for Alpha + Beta Tubulin IgG+IgA, where it is Out of Range. The diet and supplements are supposed to be helping this. The focus now is on Array 2 outcome and once that is healed we’ll test this one.
On 7, 2019, this reading showed that I can’t eat eggs or cheese, no for rice and wheat. Beans and lentil are out of range. I can’t eat macadamia (bad for keto). The rest are a few and aren’t difficult for me to follow.
I have met with Dr. Sandlin Lowe, MD at Amen Clinics in New York. The outcome was astonishing showing that both my left and right temporal lobes aren’t functioning well. I followed plenty of the discussions protocols but I am yet to see any positive outcome
The treatment plan has surely been different over the years for different purposes. However, I am
I have worked with three different people who specializes in CBD. With long months, I discovered that the numbers must be much higher than I first heard. It is helping but still I am not 100% out of seizures
Some text will be written and put here
I got infected on Nov 5th, 2020, and the first three days were extremely difficult. After 10 days has passed, majority of the symptoms went down but the testing shows the case is still positive.
Stopped at 2013 as I started on healthier diet and I
stopped processed food, high carbs and sweets. I then switched into four different diets over the years, all are healthy diets for sure but not all were the right ones.
These are treatments and tools that I have tried but they did not yet yield into positive outcomes. I am still thinking they will work at one point once I finish root causes that haven’t yet been healed.
I have researched and spoken to the best specialist in the field. I had several sessions with Dr. William Pawluk, who is “the” expert in the field of PEMF and I ended up with two devices. I still use often but no positive impact on the brain function nor seizure control
I started with Dr. Barry Sterman, and then went through many doctors with different devices. Some doctors believes that with a brain resection, it is not practical to expect anything from the Neurofeedback
These are things I haven’t yet worked on, but I may have to do that if I failed to find positive outcomes from the current plans
I have a confirmed heterozygosity at 1p and 19q, and MGMT promoter was methylated. At
the right time, I may decide to take Temozolomide.
One day, I may go to King Hussein Cancer City to try Temozolomide. I am not into Radiotherapy, however.
Hypnosis is a trance-like mental state in which people experience increased attention, concentration, and suggestibility. I intend to soon talk to the right practitioners with experience of patients who has brain challenges
I have spoken to a doctor who advised that I look
into new opportunities. However, this required traveling
and staying in the U.S. for several weeks and I couldn’t
allocate the time to do that yet, especially with Coronavirus
Since 2013, and I’ve been working with different people, most of them are in the United States. A good number of them are ones that I traveled to them, while others I got their service online.
They have different approaches and have different specialists. I have mentioned them here, and I spoke about each one of them and where applicable I shared their proposed solutions and/or supplement protocols.