Personal Story of Brain Tumor Patient

I was diagnosed with a brain tumor in 2005, had surgery in 2019, another in 2021, and I have my third surgery in Jan 2024. 

What I have is Low-grade oligoastrocytoma (low-grade mixed glioma), WHO grade II, so far!

I’ll share with you when it started, my latest symptoms, the critical test results, and some probable causes of my diseases.

Personal Story of Brain Tumor Patient

I was diagnosed with a brain tumor in 2005, had surgery in 2019, another in 2021, and am planning to have another in Jan 2024. 

What I have is Low-grade oligoastrocytoma (low-grade mixed glioma), WHO grade II so far!

An MRI in November 2023 revealed a slow-growing tumor.

I’ll tell you when it started, my latest symptoms, the critical test results, and some probable causes of my diseases.

Personalized Peptide Vaccine

I made a “Personalized Tumor Neoantigen-Specific Vaccine Treatment” that started in Germany in 2021, right after my second surgery, and it lasted around a year and stopped back in March 2023.  You’ll read more about the test I had prior to the vaccine and my experience during those many visits to Germany.

My Brain Surgeries

I have had two brain surgeries so far.  There are their full details right before, during, and right after the surgeries, with photos, videos, and outcomes. 

Hanover, Germany

  • 3rd Surgery by Prof. Madjid Samii

    International Neuroscience Institute, Hanover, Germany
    I had my third surgery by Professor Samii successfully.

    I will share my details as soon as I get the time!

  • 2nd Surgery by Dr. Bartolomé Oliver

    Teknon clinic, Barcelona, Spain
    I am sharing all the surgery that was took place by Dr. Bartolomé Oliver during this surgery and after surgery, and the pathology.

    Prior to the surgery, I had a video call with the doctor, who then recommended that I move immediately for surgery during emergency surgery during the COVID-19 pandemic, where traveling was nearly impossible.

    READ MORE...

  • 1st Surgery by Dr. Rolando Del Maestro

    Montreal Neurological Institute and Hospital, Canada
    I traveled two months prior to surgery for an assessment where I had an fMRI that assured him first that my surgery was doable (unlike others said it wasn't). This great surgery was done by Dr. Rolando Del Maestro and few days after that, I took the pathology

    I was given few images, but no videos was available back then.

    READ MORE...

TREATMENTS​

I have plenty of treatments going after targets by different doctors, all of which are either related to the brain or gut mainly.

TESTS & Scans

MRI Timeline

How Many So Far? I’ve taken probably 39 MRI scans since 2006. Almost all of these tests were contrasted until I discovered that making so many MRI scans with gadolinium-based contrast was...

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Blood Tests

I had plenty of tests over the years.  I recorded them in one view over the years, with colors marked when numbers are above or below the range, but on Functional Medicine...

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GI MAP: DNA Stool Analysis – Stool Test

September 2020 The report still shows H-Pylori being positive. I am currently on one-month of Matula Tea and hoping to finish by the end of November 2020 I suggest you have a look at...

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Mycotox Test Outcome

What Are Mycotoxins? Mycotoxins are toxins produced by certain molds (fungi). Mycotoxins are odorless, invisible, and tasteless. Mycotoxins can cause a variety of adverse health effects and pose a serious health threat...

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SPECT Scan

Jan 8th, 2020 Second Meeting with Dr. Lowe – Amen Clinics Three months have passed since I first met Dr. Sandlin Lowe, MD, it was meant to be that we meet again...

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Cyrex: Functional Immunology and Autoimmunity Tests

Cyrex™ is a Clinical Immunology Laboratory Specializing in Functional Immunology and Autoimmunity Arrays 2: Intestinal Antigenic Permeability Screen The test was just released on December 8th, 2020. You can download the source...

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Neurologists and Seizures

I have worked with different Neurologists over the year, all with one target: seizure control. Worked on diets, supplements over 11 years.  At the end, CBD turned out to be the best but I’m not yet 100% controlled yet.

An innovative approach to neurological challenge with this rehabilitation programs. Taking me as a “brain injury”, I had the most comprehensive assessment tests onsite.

Practitioners

I am proud to state that I have met many fine doctors, mostly in the United States, while surgeries were in other countries. Functional Medicine inspired me to find tracks that were of help. Each is a specialist in his area, and the majority helped in their own area, knowledge, experience, and specialization.

Dr.Flannery

I have worked a great deal with Dr. Flannery and have discovered with him plenty of health challenges that needed to be nailed in sequence. I heard about him during one of the training sessions at the Dr. Kharrazian Institute.

Dr. Datis Kharrazian, PhD, DHSc, DC, MS, MMSc, FACN

One of the finest people, researchers and doctors I’ve met. I have not yet been a patient working with Dr. Datis. I have been learning from him in as many ways as possible.

Michelle Gerencser, MS

Michelle is an excellent consultant in handling cancer cases, and especially brain cancer, chemo, radio surgery and symptoms around them . She’s has worked on educating me on the link between diet and disease, and how when possible supplements can resolve disease when linked to blood work. 

Dr. Sandlin Lowe, MD

I met him first on a phone call, followed by a meeting in person at the Amen Clinic in Sep, 2019. Dr. Sandlin Lowe is a Neuropsychiatrist and expert in Translational Clinical Neuroscience and Therapeutics.

Dr. David Musnick, MD

David Musnick, MD has been in Private Practice in Bellevue since 2003 and was in practice in Seattle prior to his Bellevue practice.  Dr Musnick is constantly learning, teaching, writing and keeping up in his fields. Please  see details below. I will write soon about his protocol given to me soonest

Aviad Elgez, ND

He is a licensed Naturopathic Doctor who graduated, with recognition and awards for academic excellence, from the accredited Canadian. He showed me how Mycotox is critical and how to deal with it. It is still work in progress.

Robert Miller, CTN

An excellent doctor that I met in person explained to me how DNA readings can say things that blood work may fail to say. I’ve learned plenty from him, but I have yet to see positive outcomes

Dr. Marvin Berman

I have met with the doctor to take his protocol for the Vielight device usage protocol in order to hopefully heal the left temporal lobe area and enhance my memory.

Dr. Nasha Winters. ND, FABNO

Dr. Nasha masters the Metabolic approach to cancer. As a cancer patient of her, I was advised to follow great protocols that are in line with what I’ve learned from Michelle Gerencser. A noticeable approach was that she asked me to consider Hyperbaric-Oxygen-Therapy.

Dr. Richard Cooper

He is one of the finest and most well-educated radiologists who has extended his experience and knowledge into the brain area to help treat patients with challenges. He read my MRIs and SPECT Scans several times in the last two years.

Dr. Trevor Berry

Dr. Berry spends hundreds of hours every year traveling to conferences, reading peer-reviewed literature and research to stay at the cutting edge of diagnostic and treatment parameters. Specializes in neurological fields such as vestibular and balance disorders, traumatic brain injury, pain management.

Dr. David Traster

I met Dr. David in Jan 2019, when I was seeking ways to enhance my brain functions. He made find assessments that I had not seen before. Today, he’s trains doctors on his great practice in brain rehabilitation.

Dr. Frank E. Patterson

He works for InnovaBrain, and I had spent quite some time to find someone with his specialty focusing on patients that I felt I was one of them. Very methodical and will share his knowledge with you without asking! He gave me the most comprehensive report for my case after two day of assessment.

Jama Lambert

Vice President, Education at Cyrex Lab. A very knowledgeable and very cooperative professional who helped me understand my own readings at Cyrex Lab for many blood work that I did at Cyrex Lab. I first met her in 2019 during Neuroinflammation training session that was conducted at Dr. Datis Kharazian’s Institute!

Dr. William Pawluk

I had two conference calls, where he tought me what PEMF could potentially do for my case. I learned a lot, and he helped me make a decision on which devices of PEMF I should be trying and I did.

Dr. Beverly H. Kune, ND, LPCC, LMT

Owner of Healing from the Inside Out. We first met at the Neuroinflammation training session at Dr. Datis Kharazian back in 6/2019. I am yet to have met someone who is an excellent listener.

Barry Sterman, MD.

Barry Sterman, PhD. was a sleep researcher who stumbled upon the miracle of neurofeedback during one of his experiments involving cats back in 1965.  

Dr. Mike Alden

An excellent Chiropractor who dedicated an great part of his life learning further to extend his practice to new areas. He specializes in helping patients suffering with Autoimmune Neuro-Metabolic disorders, and working with patients with concussions. 

Dr. Jeff Hergenrather

Worked with the doctor on finding over the phone to understand my best options to control seizures with CBD. I could not follow his protocol, however...

Linda Clark, MS

I met her during one of the training sessions at Kharrazian’s institutes. She was a giver, and showed me potential roads for healing. She helped my wife as a case too.

Dr. Julian Bragg

A kind doctor. I met the doctor in person seeking to see if there are any “new” options out there for seizure control.

Alison Gannett

Alison Gannett was diagnosed with terminal malignant brain cancer. She has worked on her own case and now with other clients by giving them a customized oncology nutrition. 

Dr. Kamran Fallahpour, Ph.D.

I worked with Dr. Fallahpour in New York for few days, together with my wife. I had many assessments followed by customized Neurofeedback treatment. We worked for months afterwards seeking healing without nailing seizures down!

Allan Frankel, MD.

Family Medicine Physicians & Medical Cannabis Specialists. I worked with him on the CBD treatment plan/protocol in 2019, hoping to reduce Trileptal (which took place beginning of 2020).